Wasted
Time
Keith Urban drives me
crazy with all of his wasted time. I want to buy it back. I know I had
wasted time too but I at least regret it. At sixteen, time was tangible,
staring, anticipated yet ticking unexpectedly by. I didn’t feel time
like I feel it now. It just was. I spent it. I almost always had purpose only
because I had big goals. I experienced as much as I could in every day as I
knew these experiences created parameters around my goals and gave me
perspective for the next steps. I wanted to go somewhere, do something, be
someone. There was a world to be discovered and I wanted to see it. Explore it.
I wanted adventure!
Then I was robbed.
Robbed of all that expectant time. Wheelchair life is the killer of so much
time. My day to day living exhausts me. It’s my morning goal to make “getting
ready” happen as fast as it can so living can begin. But sometimes getting
ready and a load of laundry is pretty much all I can accomplish. It is my daily
frustration and apparently, I voice this. I took Maxwell in for his fourteen
year child check and the doctor asked, “Maxwell what do you wish?” Without a
speck of hesitation, Maxwell responded, “Time. I don’t have enough time.” With
awe, the doctor looked at me, open mouthed, for an explanation. I smiled and
said, “I know doc. Seems to stare this family in the face. He gets it.” He gets
it because, for fourteen years, he’s watched his disabled parents do what they
could with what they had. Sometimes that was quite simple, yet full of
life and love. Sometimes, it was mundane yet necessary and meaningful.
Sometimes it was cup runneth over joy because life is so much fun! He’s
realized mundane life is a must and he, too, will spend precious time on the
dull and practical. But he’s also realized extreme joy explodes when we’ve
trudged through the mundane and somehow made it to the other side - with
meaning. All of this full circle living is tangible, measurable yet, at the
exact same fleeting moment it’s transitory presence leaves us spinning with
questions of “how did I get here?”
In my crazy wheelchair
life it’s ridiculous how much time I spend taking care of myself and my space.
Yet, this ridiculousness won’t take care of itself so time is grudgingly spent
on it. Want a peek into my wasted time? Here we go. I will forewarn you, this
is also a rant.
Let’s start off down and
dirty. Did you know, about every three months, I have to dig and cut and
claw all of the hair and strings that have collected in my caster wheels?
Not even kidding. Gross? Absolutely. Necessary? Just as
absolutely. I loathe this job. I take a seam ripper that was
specifically bought for this task and cut away all of the crap that has
accumulated in my wheels. Yes, this is not only my hair but others’ as
well. Don’t even react. Breathe deep. It just is. I only do it after my wheels
no longer turn and I feel as if I’m trying to push 300 pounds over carpet. I’m
sliding. So I dig and then I DW-40. In fact, living in Minnesota with sand,
salt, and wet nine months of the year, DW-40 has a spot in the front hall right
inside the door. It gets used often.
Let’s talk about going
to the bathroom. I’ll save you most of the details but aging has
apparently shrunk my bladder. Taking five minutes to go to the bathroom thirty
times a day is annoying. Totally exaggerating but we’re going by what it feels
like. Not only that, more than a billion times, I’ve been in the
stall and the woman beside me streams a couple gallons in rapid fire speed and
is outta there while I’m still stranded making sure my chair is lined up, my
brakes are on, so as not to bite it when I transfer. How do these people
exist?! I’m wide eyed, lip curled and so incredibly jealous of other people’s
bladders. ...Count your blessings, name them one by one… count your blessings,
see what God has done...
How about the simple act
of taking care of myself. Taking a shower and getting dressed takes twice
as long as an abled bodied person. If you want a demonstration, sit on a
kitchen chair and put on your jeans sitting down and only using your arms. Forever.
Which is also why I don’t “do” my hair. It’s wash, add some leave in
conditioner, maybe a pin or hat and go. Who has time? When I think I have time
and I straighten my hair, the entire time, I’m thinking, what IN THE WORLD?! I
am spending twenty minutes doing something that sets me closer to the
fashion track, yet I’m still not quite there. TWENTY minutes. I just spent LIFE
doing my hair when curly is how God made it.
What else? Let’s talk
about picking something up off the floor. Let’s say, a raw meatball that
has somehow rolled off the cutting board and under the toe kick of the kitchen
counter. Happens all the time. And I roll my eyes pretty much every time.
Now see, since surgery I can only pick things up off the floor from
leaning forward and to the right. Any other attempt will for sure send me
spilled out onto the floor because of my rigidity. So my meatball cannot just
wistfully be swept up and thrown. Oh no. I tell the dog to stay a
thousand times because apparently “stay” is an option in her Beagle mind, not a
command. I wash my hands so as not to spread salmonella onto my wheels and thus
all over the house, then maneuver my wheelchair so my right toe is close to the
meatball. I put on my breaks and finally, I can bend down, pick it up,
say “all free” to the dog who will always lick the litter free floor in hopes
of a morsel, throw it away and proceed to wash my hands again because I just
touched raw meat and cannot wheel for fear of sickness. Breathe… I just picked
up ONE thing. It all takes a guttural forever. And I’m blaringly
aware of the time that just took. Absolutely can drive me batty. And, this was
actually pretty simple in my world. Imagine spilling sticky lemonade all over
myself and/or my wheelchair. I can’t even describe. ...Count your blessings...
Talking on the phone.
You phone people. Ah! Let me draw you a picture. I need both hands to wheel my
chair, lest I go in circles. To talk on the phone requires one of two things.
One, for me to completely stop what I’m doing, sit at the table, stare at
the wall and talk. I don’t have time for this. My chair has already
stolen any extra time I thought I had. I need to make up for lost time, not
lose more. I need to do two things at once. Not only that, sitting
talking on the phone gives my arthritic elbows a reason to scream. Yes, I
am that old. OR, attempt to wheel around the house with the phone cricked in my
neck which will either cramp my muscles and give me a headache or hang up on
you. Also, not a stellar choice. So, I OFTEN don’t answer the phone. I’m
not being rude. I’m just carefully choosing how my minutes are spent.
Therefore, if I’m engaged in conversation with you, with no physical
productivity, that’s ALL I want to do. Invest my heart, words and attention
into this precious soul. No distractions. My time with you in intentional and
I’m all in. I’m highly relational and I adore my people... just not over
the phone.
Food. I spend probably
two hours every day making dinner. This would not take an able bodied person
near as long as it takes me. So, this is a conscious decision to invest my
elusive time into feeding my family. And it is worthy of my attention. To
describe how I navigate my kitchen would take a novel so trust me, it’s
unceasing movement. But, in this task, I have no complaints. I have a
high maintenance eating family. It’s my own fault, I know. They like an
absurd variety of ethnic choices, with at least three things to put on their
plate. Bless them. I do enjoy cooking, and if I’m making meals every night, I
want them inviting and colorful and delicious. Both of my children can be
bought with food so I gladly put forth effort and hours into buying them coming
back. I wholeheartedly speak their language, of comfort, filling
foods. We dream, think, and debate around the dinner table. Great discussions
are had while eating their choice foods and they will come back because of it.
This is worth all of my devoted dinner making time.
Ah! Maybe I should also
mention flat tires - on my wheelchair, not the car - that need to be changed,
and brakes that need to be readjusted, and parts that need to be ordered.
Or how about the fact that my knees and hips are in a ninety degree angle
fifteen to eighteen hours a day creating a muscle memory not in my favor.
Answer: stretching. Twice a day. I’m also required to do shoulder strengthening
so as not to tear anything shoulder related, specifically the rotator cuff.
Surgery on a rotator cuff would land me in a nursing home, completely
dependent for three to six months. Maintenance is now necessary.
I say all of this and
yet, it’s still relative, right? It’s not like my wheelchair life has given me
choices around how I spend much of my time but even so, it just might be the
most creatively spent time in the grace of which it’s lived out. It is
all still spent by me and it’s still expensive. My voluntary and involuntary
events are still pounding out a life. Breathing. Laughing. Crying. Wishing.
Praying. My position is prearranged but what I do now is determine. Determine
attitude, reaction, planning, love. What am I going to choose for my
attitude when I’m cleaning globs of hair out of my caster wheels? How can I
make this worth my fleeting time? This is what I do. Because I am forever
amazed at the complexity of people and cultures, I listen to a TedTalk or a
sermon. Give me stimulating, other worldness that takes me out of this
confinement. I still want to explore. When I’m waiting for the one
elevator that serves the entire mall, I adore the sweet babies tired mamas are
dragging around on their errands. Mama’s are strong and babies are
beautiful. I acknowledge them and build life into their day. This will only
serve as love. What comes from love? Good. Good comes from love. And good
will be passed on. This is not time wasted.
Attitude. I’m always
choosing my attitude and it is in my attitude that my story is lived out.
Attitude gives me freedom. Gives me purpose. Gives me moments spent with
quality. My life is always my life, with its issues and have tos. I will always
have the mundane, and this alone is sad. But my life is always my life,
with its influences and hopes. Adding purpose to my mundane gives me space to
actually be alive. I spend freely and conservatively. But I am not a
victim to time. We all are owners of time. My choices with time create - ugly
and beautiful. And the sum of my creations will always equal the whole of what
you see. We all have these time moments that add to the whole story. Just maybe
colored a bit differently. Feel them. Get creative. Purpose them. They are ours
to consume. And then they are history.
“You must live in the
present, launch yourself on every wave, find your eternity in each moment.
Fools stand on their island of opportunities and look toward another land.
There is no other land; there is no other life but this.” Henry David Thoreau
Psalm 94:4 “For a
thousand years in your sight are but as yesterday when it is past, or as a
watch in the night.”
Jill....hang in there!!!! I read the story about your surgery and began reading your blog. I know I haven't spoken to you since 1989....but you did make a big impact on my life in the short time we knew each other. I am so glad you and Pete ended up together. Sorry I didn't have a more positive impact on your life. Your spirit and energy are invigorating and contagious. Stay strong and hang in there. I will be following your blog from now on. Say Hi to Pete from me. James Roman Weide (SSU 1987-1989)
ReplyDeleteHi Jim. So good to hear from you. I just noticed this! Hope you are well! Will definitely say Hi to Pete. Take care!
ReplyDelete